Little Miss Magic: We are such loveable losers, eh?

When Normal is Special 8/8/2007

About 6 1/2 years ago, I was in a hospital bed in Park Ridge, Illinois holding onto to Maren and drinking in her every baby smell and nuzzling my cheek against the fuzz on her little head. I held her and loved her, and tried to imagine what Down syndrome really meant in our lives.

I had visions of Life Goes On, and smiles came to my face. I remembered Corky working at the movie theater, and wondered if Maren would find a job like that. I remembered how hard it was for him when he couldn't drive like his girlfriend, who also had T21, and wondered what would be in her future.

I thought about Special Olympics, and I thought about Special Education. Those were good and happy things in my mind. And, still, they are. But, what I was lacking was a vision of the "non-special" things that Maren would do, as well. I lacked the concepts of everyday life with my Little Miss Magic that would make her life, our lives, more "normal," than different or "special."

Certainly, I never thought that at 6 years old, she'd be on ballet recital number three, or that she'd have a wardrobe and personal style that I would love to have, or that she'd fight with her friends over who got to be "Gabriella and who had to be Sharpay" in High School Musical re-enactments. I never thought that she'd like Pink and Barbie (goodness knows I detest both and swore that I'd never allow either in my house, LOL), and I never imagined that on her first day of kindergarten, she'd be embarrassed to hug me goodbye.

Yes, it's true, Maren has already decided hugging Mom and Dad isn't cool. She won't even blow kisses on school grounds. But, Coach Mike and Mrs. Whitley, and Sister Elaine --- now they get HUGE hugs -- apparently, it's cool to hug them; parents: not so much. UGH. How is that for typical? Jon, my husband, thought surely Maren would kiss him goodbye today. Heck, she even dropped his hand when they approached the door. She wants to be the big girl on campus. And, two days into Kindy, it certainly looks like she is to us.

So, now, I think back on those hours I held Maren and thought of the few "Special" things that I knew about, and realize that nothing is as a special as the normalcy of every day life with my Little Miss Magic. I really wish I would have known then what I know now, that life is life - with or without an extra chromosome. Certainly, there are some differences, but it is all in our focus. I will focus on the beauty and charm. And, here she is, with her handsome brother Jonah who began the third grade!

We are such loveable losers, eh?

>> Friday, January 09, 2009

See, even in humiliating defeat (Alabama Sugar Bowl infamy) my kids managed to brighten my day!

And, then Camellia Grill brightened our weekend with a fun and friendly breakfast!

And of course, there is always Cafe DuMonde, Margaritaville, and the Quarter...such a vibrant town.

5 comments:

Unknown 6:27 PM: Love it.....look how big they are getting!!!!

Love you guys!
Sharon 5:40 AM: Hi! I first came across your blog eight months ago after my son was born and diagnosed with Down syndrome. Reading about Maren and your family made me see my son's future in a really positive light, at a time when I wasn't feeling very positive at all. I had never known anyone with Down syndrome - so it all seemed very scary to me. But, seeing your daughter, how full of life she seemed, how much fun she and her brothers seem to have....it all made me picture what life with my son would be. So, thank you! You have a beautiful family, indeed.
All 4 My Gals 3:10 PM: So cute! I love your kiddos. Your blog looks good too. HUGS
Anonymous 7:02 PM: What a beautiful family! I've been following your blog for a few months. I have a daughter with DS that is 6.
The Mom 10:35 AM: So sorry about that Sugarbowl ummmm loss..... What can I say.... I'm not UTE fan - but - GOOO UTES!!! People should know - never underestimate the underdog ;)

Looks like you had a seriously great vacay!!! Love the pics of the kids!

Too funny about Archie and his Roxbury infatuation ;) Kent LOVES that movie - I even got it for him for Christmas and we thought maybe the older girls could watch it - ummm - we previewed it again and thought a little better of it - they're kinda sheltered ;) The F-bomb always makes us all cringe LOLOL Kent and I laughed hard though :)

I'm hoping your hubby gets that job in Sac town - cause it sure would be sweet having you closer!!!

Little Miss Magic by Jimmy Buffett lyrics

Constantly amazed by the blades of the fan on the ceiling
The clever little glances she gives me can't help but be appealing
She loves to ride into town with the top down
Feel that warm breeze on her gentle skin
She is my next of kin

Chorus:
I see a little more of me everyday
I catch a little more moustache turning gray
Your mother is the only other woman for me
Little Miss Magic, what you gonna be?

Sometimes I catch her dreamin' and wonder where that little mind meanders
Is she strollin' along the shore or cruisin' o'er the broad Savannah
I know someday she'll learn to make up her own rhymes
Someday she's gonna learn how to fly
Oh that I won't deny

Chorus:
I catch a little more dialogue comin' my way
I see those big brown eyes just start to lookin' astray
Your mother's still the only other woman for me
Little Miss Magic, what you gonna be?

Yes she loves to ride into town with the top down
Feel that warm breeze on her gentle skin
She is my next of kin

Constantly amazed by the blades of the fan on the ceiling
Those clever little looks she gives just can't help but be appealing
I know someday she'll learn to make up her own rhymes
One day she's gonna learn how to fly
That I won't deny

Chorus:
I see a little more of me everyday
I feel a little more moustache turning gray
Your mother's still the only other woman for me
Little Miss Magic, what you gonna be?
Little Miss Magic, what you gonna be?
Little Miss Magic, just can't wait to see

It's raining, It's pouring
Your old man is snoring

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When Normal is Special 8/8/2007

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We are such loveable losers, eh?

>> Friday, January 09, 2009

5 comments:

Little Miss Magic, Indeed!

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