When "normal" is "special"

>> Thursday, August 09, 2007






About 6 1/2 years ago, I was in a hospital bed in Park Ridge, Illinois holding onto to Maren and drinking in her every baby smell and nuzzling my cheek against the fuzz on her little head. I held her and loved her, and tried to imagine what Down syndrome really meant in our lives.

I had visions of Life Goes On, and smiles came to my face. I remembered Corky working at the movie theater, and wondered if Maren would find a job like that. I remembered how hard it was for him when he couldn't drive like his girlfriend, who also had T21, and wondered what would be in her future.

I thought about Special Olympics, and I thought about Special Education. Those were good and happy things in my mind. And, still, they are. But, what I was lacking was a vision of the "non-special" things that Maren would do, as well. I lacked the concepts of everyday life with my Little Miss Magic that would make her life, our lives, more "normal," than different or "special."

Certainly, I never thought that at 6 years old, she'd be on ballet recital number three, or that she'd have a wardrobe and personal style that I would love to have, or that she'd fight with her friends over who got to be "Gabriella and who had to be Sharpay" in High School Musical re-enactments. I never thought that she'd like Pink and Barbie (goodness knows I detest both and swore that I'd never allow either in my house, LOL), and I never imagined that on her first day of kindergarten, she'd be embarrassed to hug me goodbye.

Yes, it's true, Maren has already decided hugging Mom and Dad isn't cool. She won't even blow kisses on school grounds. But, Coach Mike and Mrs. Whitley, and Sister Elaine --- now they get HUGE hugs -- apparently, it's cool to hug them; parents: not so much. UGH. How is that for typical? Jon, my husband, thought surely Maren would kiss him goodbye today. Heck, she even dropped his hand when they approached the door. She wants to be the big girl on campus. And, two days into Kindy, it certainly looks like she is to us.

So, now, I think back on those hours I held Maren and thought of the few "Special" things that I knew about, and realize that nothing is as a special as the normalcy of every day life with my Little Miss Magic. I really wish I would have known then what I know now, that life is life - with or without an extra chromosome. Certainly, there are some differences, but it is all in our focus. I will focus on the beauty and charm. And, here she is, with her handsome brother Jonah who began the third grade!

7 comments:

Kei 8:10 PM  

Oh, those are wonderful pictures! I love your posts, though they aren't as frequent as I'd like to see, but you definitely make up for in content.
She's growing up!
Love & hugs,
Kei

Tara Marie 6:09 PM  

Oh Carol....you sure did hit the nail on the head. Did I ever told you I started a photography group on Flickr.com called 'The Normalcy of Difference'

My heart is so full looking at these pictures of Miss Magic and so full of joy at reading your words.

Life is life.....and what a Blessing it is!!

Leticia 9:57 PM  

This is beautiful. My Christy is 5, and I hope she's as grown up at 6.
Would you like to share this in the carnival?
I am hosting the first ever Down sydrome blog carnival tomorrow August 12th, on Cause of Our Joy http://cause-of-our-joy.blogspot.com . If you have a favorite post about Down syndrome to share, please email it to me ASAP, and I'll post it. My email is leticia77@optonline.net
Don't worry if you missed this one, we'll be doing this every week on different blogs, so you can join in another time, or host it yourself. I just thought this would be a great opportunity to get to know one another better and spread Down syndrome awareness.
Hope to see you at the carnival!
Leticia Velasquez

Nicole 6:49 PM  

Precious precious girl! So funny about pink and Barbie, I too swore them off and am now overwhelmed with them. Okay so 4X more than you, but still!

I can't believe you guys are already embarassing her! tee hee hee. I dread those days.
Much love to your beautiful family. Tell Jon we said hi too!

Shannon 7:28 AM  

She lloks so cute in her backpack getting ready to go to school!

Laura Q 7:25 PM  
This comment has been removed by the author.
Tara Marie 3:17 PM  

Miss you, Miss you, MISS YOU!!!!!!!

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